Biography      Social & Health Issues

Recognise ME: Memoir documenting the raw journey through medical gaslighting as a chronic illness patient

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Book Details
Language
English
Publishers
Raven Crest Books (15 May 2024)
Weight
0.34 KG
Publication Date
15/05/2024
ISBN-10
1739259270
Pages
308 pages
ISBN-13
9781739259273
Dimensions
12.7 x 1.96 x 20.32 cm
SKU
9781739259273
Author Name
Anneke Vliegen (Author)
​As a spirited person I love people and like enhancing their quality of life. My body chronically deals with a variety of debilitating problems. Medical gaslighting has become my concern. I am committed to sharing my story to give other patients the courage, strength and vocabulary to speak up. I believe this will lead to improved communications between patients and professionals, and deeper understanding among the community at large. As soon as I finished secondary school, I left behind my Belgian family and friends and moved to the UK. I graduated as a bachelor in occupational therapy and obtained a postgraduate certificate in health research. Misdiagnosed with chronic fatigue syndrome for 20 years, I had to rely on the health service I worked in. It let me down badly and took me to death's door. Once other causes were identified, appropriate treatment made my issues more manageable. Suddenly I gained respect and care. Despite disappointment in the health and social systems in both countries, I lead a happy life. My husband, our teenage son and I live in a beautiful rural area in Belgium. At 52 I enjoy gentle walks, crafting and of course reading and writing.May I, and my book, provide the solid support I have always been fortunate to find.Read more about this authorRead less about this author
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MEDICAL GASLIGHTING MEMOIR by author Anneke Vliegen, diagnosed with a combination of chronic, rare, barely visible and fluctuating diseases. Anneke describes her journey to happiness, after a misdiagnosis of chronic fatigue syndrome (ME/CFS) brought her condescendence, humiliation and neglect.

For twenty years, this medical gaslighting continued until she was close to death. The discovery of adrenal insufficiency, lupus and hypermobile Ehlers-Danlos syndrome (hEDS) led to improved care and respect.

The medical world had heard Anneke’s hooves, and assumed she needed to be treated like a horse. It turned out she was a zebra - one of the exceptions to the rules.

There are all sorts of hooved species which get missed or mistreated. Shame and guilt stop many from sharing their experience.

By telling her story Anneke hopes to raise awareness. It offers recognition, insight and hope.

Prevention and a more effective therapeutic process are the aim. Readers are saying:"I've never started to read a book that I could identify with as much as this!" - Shelley Knight - ME, fibromyalgia and MCAS patient"I would recommend this book to anyone living with or those who know someone living with a chronic condition" - Lizzy Kee - Occupational Therapist and EDS patient"It was so compelling and I learnt such a lot.

I was right there with Anneke's family at every step. The writing is great; clear, lively and engaging" - Tracey Martin - Carer and Quaker advocacy representative.

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