Health, Family & Lifestyle      Families & Parents

Navigating PANDAS: A Family's Journey to Healing and Advocacy

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Book Details
Language
English
Publishers
Independently published (1 April 2024)
Weight
0.14 KG
Publication Date
01/04/2024
Pages
132 pages
ISBN-13
9798321593080
Dimensions
12.7 x 0.76 x 20.32 cm
SKU
9798321593080
Author Name
Don Donnelly (Author)
Don Donnelly is a dedicated husband, father, and advocate, residing with his wife of two decades and their two sons. With a career deeply rooted in the medical device industry, particularly in innovations designed to alleviate chronic pain, Don's professional life has been marked by a commitment to improving the well-being of others. However, his personal journey as a father has truly defined his latest venture into writing.His debut book emerges from a heart-wrenching experience with his youngest son, Scotty, who was diagnosed with Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) at the age of 9. The family's odyssey through the complexities of the medical system, consulting with 13 specialists before arriving at a correct diagnosis, revealed the profound challenges and obstacles faced by families grappling with misunderstood diseases.Motivated to shed light on PANDAS and advocate for better recognition and treatment within the medical community, Don penned this book to share their story, offer solace, and guide families encountering similar trials. His narrative is a call to awareness and a powerful reminder of the importance of perseverance and advocacy in the face of adversity.At the heart of Don's philosophy is a firm belief in fighting for the well-being of loved ones, even when faced with skepticism or misunderstanding from professionals. "Doctors can be wrong," he asserts, encouraging others to trust their instincts and advocate for the correct care and diagnosis.Through his writing, Don Donnelly aims to connect with readers in the shadows of uncertainty and fear, offering hope, understanding, and a path forward. His story is a testament to the strength of family, love, and the relentless pursuit of answers.Read more about this authorRead less about this author
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To the outside world, they appear like any other child. Yet, beneath the surface, a silent battle rages against an invisible foe.

Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) transcend their medical definition to become a day-to-day struggle that reshapes families, tests their limits, and fortifies their bonds. "Navigating PANDAS" invites you on a profound journey into the heart of this battle, revealing the untold stories of struggle, resilience, and the deep connections forged in adversity.

Within these pages lies a narrative that doubles as a roadmap through the turbulent waters of PANDAS. From the first whispers of concern to the relentless pursuit of a treatment that brings solace, this book exposes the full spectrum of emotional and logistical challenges one family faces.

Covering the nuanced aspects of diagnosis, the odyssey of finding appropriate care, and the vital role of advocacy, it offers a beacon of insight for navigating the healthcare system's labyrinth. What sets this book apart is its deeply personal lens, offering a chronicle of one family's valiant fight against PANDAS through the perspective of Don Donnelly, a father.

This account is raw, real, and immensely relatable, offering a unique glimpse into the disease beyond what textbooks and medical journals can provide. It is a testament to the indomitable spirit of perseverance, love, and hope in the face of daunting obstacles.

The author embodies the narrative's authenticity and depth, drawing from his firsthand experience of the highs and lows of parenting a child with PANDAS. This book extends beyond mere pages; it's a lifeline from someone who has navigated these troubled waters and emerged with invaluable insights to share.

Navigating PANDAS" is an essential companion for any parent threading their way through the complexities of this condition, a valuable resource for healthcare providers, including pediatricians, neurologists, and immunologists, and a pivotal read for healthcare payers and insurers, emphasizing the critical need for early diagnosis and accessible treatment. Readers will be taken on a journey that illuminates the path from the first symptoms to diagnosis, treatment, and beyond.

Offering hope, guidance, and practical advice, this narrative sheds light on identifying PANDAS, understanding the treatment landscape, and advocating for comprehensive care. Balancing the gravity of living with PANDAS against a backdrop of hope, this book confronts the challenges head-on, ultimately serving as a beacon of hope for families on a similar journey.

It navigates the serious terrain of medical treatment and advocacy with honesty and courage, vividly depicting the journey through a complex healthcare landscape. The book concludes with a compelling call to action, urging healthcare providers to heighten their awareness and understanding of PANDAS, to prioritize early testing and diagnosis, and for insurers to facilitate access to essential treatments.

It aims to transform the lives of those battling this condition. In "Navigating PANDAS," readers will find a story and a companion for their journey, offering light in the darkness and a voice to the challenges many face in silence.

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