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Health, Family & Lifestyle      Medical & Healthcare Practitioners

Living with Progressive Supranuclear Palsy: A Guide to Symptom Management

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Book Details
Language
English
Publishers
Independently published (3 July 2024)
Weight
0.11 KG
Publication Date
03/07/2024
Pages
72 pages
ISBN-13
9798332083976
Dimensions
15.24 x 0.43 x 22.86 cm
SKU
9798332083976
Author Name
Laura Louizos (Author)
Laura Louizos is a dedicated advocate and former caregiver who founded the Coleen Cunningham Foundation in honor of her mother, Coleen Cunningham, who bravely battled Progressive Supranuclear Palsy (PSP). Throughout her mother's journey with PSP, Laura was her primary caregiver, experiencing firsthand the challenges and triumphs of caring for a loved one with a neurodegenerative disease.Inspired by her mother's strength and resilience, Laura channeled her experiences into creating a foundation that provides comprehensive support, respite care, and resources for families affected by PSP and other neurodegenerative diseases. Her work focuses on ensuring that no family faces this journey alone, offering emotional and practical support at every step.Read more about this authorRead less about this author
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"Living with Progressive Supranuclear Palsy: A Guide to Symptom Management" by Laura Louizos is an indispensable resource for individuals diagnosed with Progressive Supranuclear Palsy (PSP) and their caregivers. This comprehensive guide provides valuable insights, practical advice, and emotional support to help navigate the challenges posed by this rare neurological disorder.

Inside This Essential Guide:Understanding PSP: Gain a clear understanding of PSP, its symptoms, causes, and progression. Motor Symptom Management: Discover strategies and therapies to manage bradykinesia, rigidity, balance issues, and more.

Eye Movement and Vision Issues: Learn practical tips for managing eye movement problems and adapting to vision changes. Speech and Swallowing Difficulties: Find effective techniques for improving speech clarity and managing swallowing difficulties.

Cognitive and Behavioral Changes: Get advice on coping with cognitive symptoms and managing behavioral changes. Pain and Discomfort: Explore strategies for pain relief and maintaining comfort.

Daily Living Tips: Discover practical tips for adapting the home environment, establishing routines, and using assistive devices to enhance daily activities. Nutrition and Diet: Learn about dietary recommendations and meal planning to support health and well-being in PSP.

Emotional and Psychological Support: Find techniques for managing stress, anxiety, and depression, and learn how to support both individuals with PSP and their caregivers. Advanced Care Planning: Get guidance on legal and financial planning, preparing for future care needs, and exploring hospice and palliative care options.

Resources and Support: Access a comprehensive list of medical experts, support organizations, online communities, and additional resources to build a strong support network. Appendices: Utilize helpful tools, including a glossary of terms, frequently asked questions, sample care plans, and emergency information.

Whether you are a person with PSP, a caregiver, or a healthcare professional, "Living with Progressive Supranuclear Palsy: A Guide to Symptom Management" by Laura Louizos is designed to provide the knowledge and resources needed to manage PSP symptoms effectively and improve the quality of life. With practical advice and real-life stories, this guide offers hope and support every step of the way.

About the Author:Laura Louizos is a dedicated advocate for individuals with neurological disorders and their families. With extensive experience in caregiving and a deep understanding of the challenges posed by PSP, Laura provides insightful guidance and practical solutions to improve the lives of those affected by this condition.

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